Quotes About ALS

Because ALS is underfunded, patients have had no option but to fade away and die. That is not OK.

I'm involved in Project ALS which is trying to get money for stem cell research. That's one I've been pretty involved with because if you can cure that, you can cure so many other diseases.

I have survived ALS to continue my work as a musician and composer for 28 years due to the care I receive through insurance and Medicaid. Without these supports, my family can flatout not manage my care, and my life and career will be in serious jeopardy.

I have been diagnosed with Amyotrophic Lateral Sclerosis (ALS). It's a terminal disease with an average lifespan of two to five years post-diagnosis, and scientists don't know what causes it. ALS prevents your brain from talking to your muscles. As a result, muscles die. As a result, every 90 minutes people die. I am a person.

Many ALS patients end up fading away quietly and dying. For me, this was not OK. I did not want to fade away quietly.

To cure ALS medically is not economical. The realities are that it's difficult to find funding for research for a medical cure. I believe in developing technology as opposed to medical research. Technology can be economical.

I work at a non-profit called ALS Worldwide, where we work with ALS (also known as Lou Gehrig's disease) patients and families. It is often heavy work, but I'm grateful to be able to contribute to the ALS community. I'm constantly learning about science and medicine, and I have the honor of corresponding with patients throughout the world.

The ALS ice bucket challenge was really the most brilliant publicity stunt of 2014, and it has brought worldwide awareness for a barely-known disease.

The worst part about ALS is that one day, you're able to brush your teeth; then you'll never be able to brush your teeth again. One day, you're able to walk - you're never going to walk again.

ALS does not affect cognitive process. Stephen Hawking, one of smartest people on the planet, has ALS. It rarely affects the eyes. It doesn't affect senses like hearing, taste and touch.

A terminal diagnosis can really mess with your head. Honestly, it makes you want to run away to the moon. Many ALS patients want to fade away quietly. This was not for me.

Julius Eastman is the kind of American genius not enough people know about.

ALS is like a lit candle: it melts your nerves and leaves your body a pile of wax.. you cannot support yourself standing.. you cannot sit up straight. By the end, if you are still alive.. your soul, perfectly awake, is imprisoned inside a limp husk.. like something from a science fiction movie, the man frozen inside his own flesh.

Morrie had amyotrophic lateral sclerosis (ALS), Lou Gehrig's disease, a brutal, unforgiving illness of the neurological system. There was no known cure.

The doctor who diagnosed me with ALS, or motor neuron disease, told me that it would kill me in two or three years.

Sadly, it runs in my damn family, and that disease is a mystery to just about every scientist! We are definitely interested in finding a cure for ALS! Cure it already!